Strategic Communications Helps Raise Over $40,000 for Mitochondrial Disease Research
On Saturday, I walked with about 500 people in the first Walk for Abby through the Broad Brook section of East Windsor, CT.
The walk was initiated by Carol and Joseph Sauerhoefer, the parents of three-year-old Abby Sauerhoefer, who suffers from mitochondrial disease. The goal of the walk was to raise about $10,000 to help fund research into the disease.
Mitochondrial disease means the power plants in cells don't function properly. When that happens, some functions in the body don't work normally. It's as if the body has a power failure: there is a gradation of effects, like a 'brown out' or a 'black out'.
That simple definition, and the supporting brand, marketing and communications strategy, is the result of 18 months of partnership between myself and the Foundation for Mitochondrial Medicine.
Prior to Saturday, most people in this suburban township may not have realized their connection to mitochondrial disease. Though if they knew of someone with Autism, or Alzheimer’s or Parkinson’s they had already been touched by mitochondrial disease. While awareness of mitochondrial disease may still be in its infancy, The Walk for Abby is helping The Foundation step ahead on many fronts, from awareness, to funding to connections.
Funding the cures is the Foundation's first priority. It supports the development of the most promising research and treatments of the many, many forms of mitochondrial disease. With help from events like these, they’ll get there faster.
Two days have passed and I'm still smiling. The number of people who showed up and money raised shows shows a true sense of Abby’s, and her family’s, impact on the community. Such a turnout from such a small town is heartfelt. Quite honestly, it’s jaw-dropping the turnout in this small town.




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